Story of a patient: Finally a diagnosis – Tarlov cysts (4)
Anyone who has never lived in such a situation cannot understand what desperation is happening and that one is depressed about this untenable situation. This is like a bad dream that never ends.
The doctors, to relieve their consciences, let me go with a lot of medicines that caused stomach, kidney, bowel disorders, etc.
Which means I still had to see other doctors for other problems. Result: other specialized doctors and still other drugs. And all this to the prejudice of my body and the CNS health insurance institution.
The funny thing in all these steps: no orthopedist or neurologist could tell me if this pain concerns the field of neurology or orthopedics.
One day, during an MRI I asked my neuroradiologist the meaning of the white spots on my spine. Only then did I know that they were TARLOV KYSTES.
A little more time, a little more listening and a deeper search would have solved many problems from the beginning.
I am in 2016 – Finally a diagnosis.
That day, at the beginning of my research, I realized that nothing would ever be the same. My life would forever change since Tarlov cysts are all over my spine.
Next article “What is a Tarlov cyst? “