Story of a patient: Where is the ethics of health coverage for my specific case? (14)

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Story of a patient: Where is the ethics of health coverage for my specific case? (14)

Story of a patient: Where is the ethics of health coverage for my specific case? (14)

Author Meopin - 3 May 2018
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Where is the ethics of health coverage for my specific case?

At the end of the day, there are only two possibilities for people with a rare disease: to be depressed by doctors and their non-supporters – so we stop living, or to gather the little strength left to them. fight for their rights.

Disease and rare disease are identical – it’s a DISEASE

It’s hard to explain to someone who has no idea what people with disabilities or invisible illnesses can live. It’s a daily struggle in pain to feel sick inside while you seem to be going outside.

A thought…..

We really miss good doctors.

I mean, one who sincerely listens to you rather than the one who wants to cash your check; one who learns about the “new diseases” rather than the one who raises his eyes to heaven when he hears RARE DISEASE Tarlov Kyste; one who lingers during your consultation rather than one who would not want to see you; one who, of himself, will explain the steps rather than the one that will let you look on the internet: one who will reach out to you rather than the one who will tell you that this pathology does not cause problems. – To all doctors: Listening is the basis of your job.

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Meopin

Meopin

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