Story of a patient: Where is the ethics of health coverage for my specific case? (14)
Where is the ethics of health coverage for my specific case?
At the end of the day, there are only two possibilities for people with a rare disease: to be depressed by doctors and their non-supporters – so we stop living, or to gather the little strength left to them. fight for their rights.
Disease and rare disease are identical – it’s a DISEASE
It’s hard to explain to someone who has no idea what people with disabilities or invisible illnesses can live. It’s a daily struggle in pain to feel sick inside while you seem to be going outside.
We really miss good doctors.
I mean, one who sincerely listens to you rather than the one who wants to cash your check; one who learns about the “new diseases” rather than the one who raises his eyes to heaven when he hears RARE DISEASE Tarlov Kyste; one who lingers during your consultation rather than one who would not want to see you; one who, of himself, will explain the steps rather than the one that will let you look on the internet: one who will reach out to you rather than the one who will tell you that this pathology does not cause problems. – To all doctors: Listening is the basis of your job.